Today before we went in to see the pediatrician, I had tried the first milk feeding since doing all pedialyte for the past 24 hours... well we went to place him on the counter to be measured and weighed and the gas in his tummy caused so much pressure his g tube popped out all on its own. Ahh.. I can never get comfortable seeing that happen but at least I know what to do and I started moving rather fast at replacing it. I think the nurse was as suprised as I was. So his belly is overly full of gas.. not much room for food. Then a new problem appeared during the exam. She saw a double ear infection to top it all off.
So we are doing antibiotics and sticking with slow pedialyte and using the oxygen as needed. She suggested she could put Sam back in the hospital but I told her anything would be better than that which led to my breaking down and asking the Dr. if we could get the nursing help which in the past has been questionable for if we could get insurance to pay for it. I think she realized how exhausted and spread thin we are right now and she put me in touch with a service who is sending out their nurse and a director tomorrow to discuss 24 hour nursing or night nursing. Sacred Heart is doing the referrals as we were there not long ago. The woman freaked me a little when she suggested that insurance would pay for Sam to go live in a care facility in Plantation 6 hours away and that we could take the girls there to vacation and see him if I was interested in that option...WHAT?? - NO! That was all I could muster. I can not imagine a scenerio where our son would go live in a far away hospital. Home nursing is going to be enough.
|1 Little 2 Little 3 Little Indians.. 1 Little Indian Girl..|
|Bella's Soccer Gang.. We will miss those Saturdays!|