Late afternoon we had a call that nearly threatened those good feelings as it was the home health company calling to say that they found out our insurance policy only covers up to $2500 per year of home health. Even as our policy has a $5 million lifetime limit.. not much covers help at home with an involved child. I had been praying so hard about this and it just feels like we can't find a way to make anything work in our favor. The company said full time home health would be about $180k per year which is nothing in relation to what is spent in an ICU at about $50 -100k per week and Sam has been in the ICU or NICU 5 times and for up to 3 months of his little life. They have tons of other infant patients that get full time nursing fully paid by medicaid. I just feel sick about everything. I don't know what to do differently to find the solutions. I am out of ideas and just plain tired. I need to work as we have been hit like a truck by this medical stuff and my not being able to aid in bringing in additional income. I just have to trust God to help us find the answers.
That evening we also had a wonderful visit from our good friends, the Riddle family. Greg was one of my closest friends from high school and helped bring Jason and I together in 9th grade... ahh that was soo long ago. They have a new baby girl and she was absolutely adorable. The babies got to meet each other and Sam was quickly entranced by lovely little Lillian. He wanted to touch her face and pull her to him. It was so sweet! He really has met few babies and it was so neat seeing his eyes dance at watching her up close. I am so thankful for good friends!
So today we are finishing up the decorations and hopefully Sam has a low key day so he has energy for tonight. We are planning to have some good friends over for a little potluck get together. Should be a good time. I can't recall the last time we had anyone over besides family before this week. It has been a while as we have been hermit crabs I guess. Prayers for all those families experiencing illness or a loss in their families during these holidays. Even with all the reasons to find joy, it can be a very hard time of year for many people.